Home Forums Health, Fitness & Beauty Thyroid ? Medication? Is anyone else having Thyroid problems?

This topic contains 12 replies, has 7 voices, and was last updated by  Cheekiweeki 10 months, 3 weeks ago.

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  • #389788

    Cheekiweeki
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    I have been otherwise engaged for the past couple of months and haven’t had a chance to come on here – I have missed my little chats and visits. However, I wondered if anyone has any info about Thyroids and the medications that are suggested. I am evidently one of the 20% who has a thyroid that is sort of OK but maybe a little high or low – so, several years ago my Dr. at the time, suggested I try levothyroxine which is (was) the standard remedy. Evidently last October there was some problem arose with the French supplier and the pharmacies switched to a German product ‘L-Thyroxin Henning’.

    In February I went to the Dr. to see if he could suggest some hormone treatment as my research had turned up a natural hormone that might help my ‘hot flashes’ in the night, headaches and lack of energy – the latter manifesting itself as my wanting to sleep some more AFTER a good 8 or even 9 hours of sleep, and then having no energy to get on with jobs that I needed and wanted to do because I felt SO tired!

    My husband suggested I check out the meds I was taking for my heart and Thyroid as he maintains that anyone taking anything for an extended length of time is bound to suffer from side effects. He was right! The before mentioned Thyroid meds have the following side effects……

    Fast heartbeat  Light head and dizziness,
    Sensitivity to heat.
    Hunger.
    Nervousness and anxiety.
    Shakiness.
    Sweating.
    Thin skin and brittle hair.
    Tiredness.

    Other than thin skin and brittle hair, I have had all the other complaints but put them down to hormones, until the fast heartbeat, heart flutters and dizzy spells made me think that my heart meds needed boosting! Back to the Dr who suggested a full blood test.  Blood test came back and even I could read it as everything being plunked in the middle of where it should be and pretty good. This is when I dug deeper and discovered the side effects were from the Thyroid med.  Back to the Dr. He now suggests that I ween off the L Thyroxin Henning and take nothing, have a blood test every three months and monitor by list, any effects, good or bad.

    Evidently, there is no Homeopathic remedy – reading the letters sent in from 1000s of people suffering some or all of the side effects of ‘L-Thyroxin Henning’ is incredible, I had no idea it was so bad.

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    #389789

    commandomum
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    hi

    I too have an issue with a thyroid “problem”

    I have been on Levothyroxine for years, having annual blood checks to make sure I am on the correct dosage

    I had always been told that I would need the medication for the rest of my life as it was classed as a “life threatening” problem

    I am on 125 micrograms daily and have been on this dosage for years ! I am 67 , so well past the time of life associated with hot flushes and night sweats …

    Since retiring and living permanently here for the last almost 2 years I have continued to get my meds on repeat prescription from the UK (DONT ASK!)- I am in the health system here in Brittany via the S1 and have applied here and registered with a doctor. However I chose to do it this way ie getting my meds via my “last” doctor in UK as for some weird reason I am still on their books – I had heard stories about this new thyroid medication which is used here in France and  I found to be quite scary,

    I realise I cannot go on this way for ever and my family back in UK, will- one day- not be able to collect the meds for me.

    So, my question is…. is a thyroid problem really life threatening and what would happen if I stopped taking it

    What do others experience after changing to the new medication used here in France

    Thanks for bringing the subject up Cheekiweeki

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    #389794

    John P
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    As you have access to the French health service CM I suggest you visit your Doctor and discuss your concernes. I am on medication for life since my heart operation and my Doctor prescribes for me every three months and I have a blood test every month. I cannot get a new prescription without seeing my Doctor and she gives me a full check up every time. I also have a check up with my cardiologist every year.

    My experience of the health service here has been excellent and it makes sense to have regular check ups with your doctor especially as none of us are getting any younger. Any stress caused by worrying about your medication will not help your case. :yes:

    I am sorry CW, I have no experience of thyroid problems so cannot comment other than to suggest the same, go and discuss with your Doctor. Medication works differently for individuals, what suits one person my have adverse effects for others.

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    #389797

    commandomum
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    Thanks John P you are right- I will go to my dr here and have a chat

    Regards

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    #389798

    Angela
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    I have been  on levothyroxine for 27 years since having my thyroid partially removed.  My dose has never changed.  I still get it from UK but if my carte vitale ever turns up I will hopefully be getting it from here.  When I started taking this tiny tablet I asked my GP what would happen if I didn’t take it and this is what she said:  ‘had I seen the films where women were in mental asylums all lethargic/scruffy/ unkempt etc ?  that is what used to happen to women with thyroid problems, there was obviously no diagnosis then for the problem’.  I have taken my tablet every day since!  Whether you believe what my GP said is another matter – I did.  My friend who is sat beside me (they are staying for a few days) says she went down to under 7 stone (normally 91/2), was so tired, went to doctor, was diagnosed but it took nearly a year to get back on track but during that year she actually lost most of her hair.  This was all 15 years ago.  So whatever you do get the meds sorted.  They are important.

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    #389800

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    I think all medications and the effects they can have should be thoroughly looked into when prescribed, as has been said everyone is different in the way they support medications. Thyroid problems have major intricacies and should be taken very seriously, speak to your GP and don’t give up until you’re happy with the outcome and with the medication is my advice.

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    #389803

    Jazzy
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    I take 50mg of Levothyroxine daily and feel totally fine with it. Just looked at the packet and mine are Merck. Had heard about the problems associated with the new formula and that there were lots of petitions etc.

    If you read the leaflet in a box of aspirin there will be a list of side effects. Important not to get too hung up about them. Also any side effects are worse when you start the meds until your body adjusts not the other way round.

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    #390423

    Cheekiweeki
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    “My friend who is sat beside me (they are staying for a few days) says she went down to under 7 stone (normally 91/2), was so tired, went to doctor, was diagnosed but it took nearly a year to get back on track but during that year she actually lost most of her hair.”

    Angela ? Just wondering was this because she was on a Thyroid med or before she went onto it?

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    #390424

    Cheekiweeki
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    If you read the leaflet in a box of aspirin there will be a list of side effects. Important not to get too hung up about them.

    You are absolutely right Fruitcake….. it is so easy to read about ‘any’ illness and the symptoms and to suddenly convince oneself that this is what one has!!! However, I went to the Dr. originally months ago to update my prescription and mentioned the fact of the hot flashes, not sleeping, moods etc…. thinking that it was to do with female hormones – Now, I am SEVENTY ONE (Commandomum!) so, I am certainly beyond the age of that problem. I then started having a sudden ‘funny tummy’ (two hours after eating), that sent me flying to the bathroom with no time to spare. I put this down to eating something that didn’t agree….. but that problem became more than a passing (sorry for the pun) problem when it gradually started happening every time I ate a meal!  This can be very embarrassing, especially when it happened after a picnic on the beach, thank goodness my husband and I were the only ones on the beach at the time!  What about the increased heart pounding, shaking, nervousness and dizzy spells? Thyroid?  This was when  I returned to the Dr. and he suggested that it ‘Might’ be connected to the thyroid.  Our communication is VERY difficult as he has NO English and my French is not up to the conversations he has with me…. so I bring a ‘translator’.  This is not really satisfactory either – wish I could find a Dr. who has some understanding of English as my learning of French is not going to expand quickly enough. After that appointment, I checked out the side effects and was somewhat relieved that they are a match for those listed for L-Thyroxin Henning and not my heart.

    On the last visit he told me that as I am in the 20% of people with a Thyroid that fluctuates very little,  nothing adverse would happen to me if I stopped (I wonder why I was on it then?) and he even told me that I would probably feel better for NOT taking the med (again, I wonder why I was put on it in the first place) I am only taking a 25mg dose – the lowest I think. Anyway, I have gradually cut down the size of the pill each couple of days and now starting this week without it….. I will let you know how that goes.

     

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    #390434

    Sunshine
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    I have Hashimoto thyroid disease, it took a decade to get the correct diagnosis, took levo which did not do too much for me but did stop me jumping off the bridge in Dinan, there is a web site called ” Stop the thyroid madness” which is an excellent resource for everything connected to the thyroid.  Re: Blood work – Free T3 & Free T4 are the important indicators.  Natural thyroid and Cytomel are what gave me my life back.  There is an excellent Endroconologist at Dinan hospital who speaks good english.

     

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    #390437

    Angela
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    Morning – just to answer your question cheekiweeki, it was before and during.  It took a long time to get her on the right amount of thyroxine (as it was called then)  –  she is now on 125 mg but at one point she was on more.  I have always been on 100mg.  If you are going off the meds just be careful and make sure you still have the blood tests.  I liked sunshine’s post and am going to look on the website.  Good luck.

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    #390447

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    I am finding this thread very interesting and have ‘saved’ the website that sunshine posted to study in depth at my leisure. I am particularly interested in the part about having the standard blood test result of normal that is not necessarily being the true picture. My GP did the blood test as I suggested it after losing my eyebrows and now a lot of my hair, like Cheeki I still get hot flushes (I’m 73) cannot, however I try, seem to lose weight …. etc.

    As the test came back ‘normal’ the GP shrugged and said hair loss etc must be hereditary and I have accepted it as that but I shall now study that website for more detail!

    Let us know how you get on without the medication Cheeki  :yes:

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    #393375

    Cheekiweeki
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    Thank you all for your input – and thank you Angela and Sunshine too – I will be looking for that website” Stop the thyroid madness” to learn more. Fruitcake…. I have not taken any Thyroid med for about three weeks and gradually all the side effects mentioned have disappeared…… thank goodness. My husband tells me he notices a marked difference, I know that my enthusiasm to rise in the morning and my moods have improved incredibly. I am beginning to feel like my old cheerful self again… then I wonder is that to do with the wonderful weather and the fact that our house reno is coming on well too…… LOL  A friend mentioned that her hair has started coming out in handfuls – her Dr tells her the same – nothing untoward in her blood tests….. my niece of 60ish the same – however the latter had lost her sister to cancer last year and I feel the hair loss could be delayed stress/anxiety/grieving.  Best of luck finding what is the problem and please let me know too.

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